Today marks exactly two years since I started taking Enbrel to help with pain and inflammation from Ankylosing Spondylitis, aka axial spondyloarthritis. In all this time, I’ve been paying out of pocket for Enbrel. My monthly bill for 8 injections is 30,000NT per month. As you can guess, the stress of coming up with this […]
We’re learning about FND and finding wellness with Alison Hayes in today’s MSW Interview series. Learn from this talented health advocate.
You’ll never think of the cost of chronic illness and maintaining an income until it happens to you. Here’s a breakdown of what Spoonies think about.
Most chronically ill patients struggle to find purpose and meaning in life, and a great number of us do so with advocacy work. Some of us also seek volunteering opportunities, so today’s post is about finding the right kind of volunteer work when you are chronically ill.
Coping with stress and chronic illness during a global pandemic is rough. But is it much different from how chronically ill patients were already living?
Life with COVID19 and Chronic Illness in Taiwan Update – Life in Taiwan during a global pandemic and having to visit a hospital in Taiwan each month.
BELIEVE US: Invisible Illness Awareness Week 2019 – How to show compassion when someone says they are disabled or have an invisible illness.
Written in honor of World Mental Health Awareness Day and World Arthritis Day 2019 – Learning to love your chronically ill body is possible. Here are some things to remember.
Failing, Succeeding, Pausing, Deciding and Thriving with Chronic Illness – Read about how I’m managing my chronic life and learning from it every day.
Ankylosing Spondylitis Ten Years After Diagnosis – What do you wish you had known in your first year after diagnosis compared to what you know now?