Advocacy Initiatives, A Move, and More for May 2021! Ah, where to start? Today’s post is a personal update post. I rarely take the opportunity to do these types of posts, but we’ve had a lot happening and there’s no better way to update than by telling it like it is! Read on to learn more about my May initiatives – my busiest month by far in 2021.
Walking for Ankylosing Spondylitis is challenging for me with fibromyalgia and MECFS to deal with as well. But May is here. Time for change!
Happy International Day of Persons with Disabilities in Taiwan! I’ve seen zero coverage in Taiwan and I hope this post raises some awareness for the disabled community in Taiwan.
Today marks exactly two years since I started taking Enbrel to help with pain and inflammation from Ankylosing Spondylitis, aka axial spondyloarthritis. In all this time, I’ve been paying out of pocket for Enbrel. My monthly bill for 8 injections is 30,000NT per month. As you can guess, the stress of coming up with this […]
October 12 – It’s World Arthritis Day! I’ve been living with Axial Spondyloarthritis (Ankylosing Spondylitis) and osteoarthritis for over a decade. Last week I found out I have ANOTHER arthritis diagnosis! Ta-da! My rheumy has decided I have Psoriatic Arthritis! Guess what? AS and PsA are subsets of Spondyoarthropathies. I didn’t even know it’s possible […]
BELIEVE US: Invisible Illness Awareness Week 2019 – How to show compassion when someone says they are disabled or have an invisible illness.
Failing, Succeeding, Pausing, Deciding and Thriving with Chronic Illness – Read about how I’m managing my chronic life and learning from it every day.
Ankylosing Spondylitis Ten Years After Diagnosis – What do you wish you had known in your first year after diagnosis compared to what you know now?
Chronic Illness Prompts: Meeting, Advocating, Tweaking, Working, Curating – What chronic illness bloggers write about when given writing prompts to write about their chronic lives.
Figuring, Completing, Boring, Cuddling, Chatting – August 2018 Linkup Party for People with Chronic Illnesses
A Chronic Voice hosts a link-up party each month for those of us who are chronically ill. Sheryl’s writing prompts for August are: Figuring, Completing, Boring, Cuddling, and Chatting.