Walking for Ankylosing Spondylitis is challenging for me with fibromyalgia and MECFS to deal with as well. But May is here. Time for change!
Category: ANKYLOSING SPONDYLITIS
Ankylosing Spondylitis, or AS, is an inflammatory form of arthritis that primarily affects the spine. Other joints can become involved. It causes inflammation of the spinal vertebrae that can lead to severe, chronic pain and discomfort.
AS can also cause inflammation, pain, and stiffness in the shoulders, hips, ribs, heels and hands and feet. Sometimes the eyes, lungs and heart can become involved. The involvement of the sacroiliac joints (SI) doing the progression of this disease are a hallmark feature of Ankylosing Spondylitis.
International Day of Persons with Disabilities in Taiwan – 3 December
Happy International Day of Persons with Disabilities in Taiwan! I’ve seen zero coverage in Taiwan and I hope this post raises some awareness for the disabled community in Taiwan.
What Happened When I Stopped Taking My Meds
Today marks exactly two years since I started taking Enbrel to help with pain and inflammation from Ankylosing Spondylitis, aka axial spondyloarthritis. In all this time, I’ve been paying out of pocket for Enbrel. My monthly bill for 8 injections is 30,000NT per month. As you can guess, the stress of coming up with this […]
World Arthritis Day – Why It Matters To Me – Arthritis Everywhere
October 12 – It’s World Arthritis Day! I’ve been living with Axial Spondyloarthritis (Ankylosing Spondylitis) and osteoarthritis for over a decade. Last week I found out I have ANOTHER arthritis diagnosis! Ta-da! My rheumy has decided I have Psoriatic Arthritis! Guess what? AS and PsA are subsets of Spondyoarthropathies. I didn’t even know it’s possible […]
BELIEVE US: Invisible Illness Awareness Week
BELIEVE US: Invisible Illness Awareness Week 2019 – How to show compassion when someone says they are disabled or have an invisible illness.
Failing, Succeeding, Pausing, Deciding and Thriving with Chronic Illness
Failing, Succeeding, Pausing, Deciding and Thriving with Chronic Illness – Read about how I’m managing my chronic life and learning from it every day.
Ankylosing Spondylitis Ten Years After Diagnosis
Ankylosing Spondylitis Ten Years After Diagnosis – What do you wish you had known in your first year after diagnosis compared to what you know now?
Chronic Illness Prompts: Meeting, Advocating, Tweaking, Working, Curating
Chronic Illness Prompts: Meeting, Advocating, Tweaking, Working, Curating – What chronic illness bloggers write about when given writing prompts to write about their chronic lives.
Figuring, Completing, Boring, Cuddling, Chatting – August 2018 Linkup Party for People with Chronic Illnesses
A Chronic Voice hosts a link-up party each month for those of us who are chronically ill. Sheryl’s writing prompts for August are: Figuring, Completing, Boring, Cuddling, and Chatting.
Mobility Challenges and What An Exoskeleton Can Do For You
The day I got a call about testing a robotic exoskeleton designed for assisting people with mobility issues was life-changing. We knew things would be difficult for us when I got sick, but we didn’t know I’d lose the use of my legs. My life changed with KEEOGO.