MECFS - Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

May Momentum - Carrie Kellenberger's Story with ME for MECFS Day About MECFS - Myalgic Encephalomyelitis - Chronic Fatigue Syndrome

MECFS is a poorly understood neurological disease that millions of people suffer from. It is known as Myalgic encephalomyelitis or Chronic Fatigue Syndrome. We use MECFS as an acronym. ME is a disabling neurological condition that affects the central nervous system, brain, blood, muscles, joints, GI tract, and lymphatic system.

World ME Awareness Day is on May 12.

This day is shared with Fibromyalgia Awareness Day. Both diseases are connected. ME is a life-altering disease that comes with a massive array of symptoms. The most common symptoms of ME are:
  • post-exertional malaise
  • un-refreshing sleep
  • profound fatigue
  • cognitive impairment
  • hypersensitivity to noise and light
  • orthostatic intolerance
  • pain
Around 25% of ME patients are affected severely by this disease. This means they are housebound, bedbound, or they might require a wheelchair IF they can mobilize during various stages of this illness.

No matter where you fall on the spectrum with ME, it WILL disrupt your life.

Most of my readers are likely aware that I’ve been mostly housebound for a few years. ME is one of the most common chronic illnesses. Campaigns will be ongoing throughout May as organizations and advocates around the world speak up to raise more awareness about ME. This disease does not discriminate. ME affects all social classes and ethnic groups. It is the most common cause of long-term absence from school, and it can affect more than one family member, which suggests that genetic factors are involved. This is why we say Millions Missing. Please help us find a cure. Leave no one behind.

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