May Momentum and World MECFS Day – My story with MECFS and some information from experts who have found that COVID19 and MECFS intersect as viral illnesses.
Category: MECFS – Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
About MECFS – Myalgic Encephalomyelitis – Chronic Fatigue Syndrome
MECFS is a poorly understood neurological disease that millions of people suffer from. It is known as Myalgic encephalomyelitis or Chronic Fatigue Syndrome. We use MECFS as an acronym.
ME is a disabling neurological condition that affects the central nervous system, brain, blood, muscles, joints, GI tract, and lymphatic system.
World ME Awareness Day is on May 12.
This day is shared with Fibromyalgia Awareness Day. Both diseases are connected.
ME is a life-altering disease that comes with a massive array of symptoms. The most common symptoms of ME are:
- post-exertional malaise
- un-refreshing sleep
- profound fatigue
- cognitive impairment
- hypersensitivity to noise and light
- orthostatic intolerance
- pain
Around 25% of ME patients are affected severely by this disease. This means they are housebound, bedbound, or they might require a wheelchair IF they can mobilize during various stages of this illness.
No matter where you fall on the spectrum with ME, it WILL disrupt your life.
Most of my readers are likely aware that I’ve been mostly housebound for a few years.
ME is one of the most common chronic illnesses. Campaigns will be ongoing throughout May as organizations and advocates around the world speak up to raise more awareness about ME. This disease does not discriminate. ME affects all social classes and ethnic groups. It is the most common cause of long-term absence from school, and it can affect more than one family member, which suggests that genetic factors are involved.
This is why we say Millions Missing.
Please help us find a cure. Leave no one behind.
Coping With Stress And Chronic Illness During a Global Pandemic
Coping with stress and chronic illness during a global pandemic is rough. But is it much different from how chronically ill patients were already living?
Failing, Succeeding, Pausing, Deciding and Thriving with Chronic Illness
Failing, Succeeding, Pausing, Deciding and Thriving with Chronic Illness – Read about how I’m managing my chronic life and learning from it every day.
Chronic Illness Prompts: Meeting, Advocating, Tweaking, Working, Curating
Chronic Illness Prompts: Meeting, Advocating, Tweaking, Working, Curating – What chronic illness bloggers write about when given writing prompts to write about their chronic lives.
Figuring, Completing, Boring, Cuddling, Chatting – August 2018 Linkup Party for People with Chronic Illnesses
A Chronic Voice hosts a link-up party each month for those of us who are chronically ill. Sheryl’s writing prompts for August are: Figuring, Completing, Boring, Cuddling, and Chatting.
Mobility Challenges and What An Exoskeleton Can Do For You
The day I got a call about testing a robotic exoskeleton designed for assisting people with mobility issues was life-changing. We knew things would be difficult for us when I got sick, but we didn’t know I’d lose the use of my legs. My life changed with KEEOGO.
Chronic Fatigue Syndrome: I Am One of the Millions Missing
Chronic Fatigue Syndrome: I Am One of the Millions Missing – When I have a Grey Day, aka a Missing Day, my ME/CFS hits overdrive and I go missing. Where do I go?
Alternative Treatments to Chronic Illness: Do They Work?
Alternative Treatments to Chronic Illness: Do They Work? Here are the alternative treatments I’ve tried that did not work to alleviate my disease symptoms.
Letting Go With Chronic Illness Doesn’t Mean Giving Up
Letting Go with Chronic Illness – Learn to accept what you need and don’t need with chronic illness. Growth comes from making room for new things.
Chronic Illness: Never Did I Ever Think…
Chronic illness is hard to understand. There are many things to consider when you’re chronically ill. These are things I never thought of until I got sick.