Building Resilience and Understanding
When I was diagnosed with Ankylosing Spondylitis over a decade ago, I didn’t know what to think.
No one told me what to expect. At first things were slow going. I had a year that was really bad, but once the medications kicked in about six months after my diagnosis, my quality of life improved for a few years. I was back on my feet and running again and I didn’t have to use my cane. Those were the good days.
Then it got worse again. Things progressed quickly in July 2014, and I found myself being house-bound more and more often. It didn’t take me long to see the big picture – what the rest of my life would look like.
Suddenly I realized that sports were no longer an option.
Without sports, where could I turn to relieve my stress and anxiety about being sick all the time?
At first I locked myself away with bitterness, but subconsciously, my head was already searching out things to use for that other side of me that my family will tell you has been there since I was a child.
I’ve always been an artist. Music and art are great passions, so when I was done grieving for what I had lost, I turned to my love for art.
Art is where I redirected my focus and all my attention in an effort to alleviate some of the stress and heartache I was going through with these diseases.
They may have robbed me of my abilities to run or dance the way I used to, but my artistic side, which has sustained me through childhood, has always been there and it was ripe for picking.
Art is where the answer to building strength and resilience was found in dark days of sickness. I relied on art for zen moments and it allowed me to express my feelings and emotions.
The best part about this is that I have many outlets for art, and I can always find something to do to fill a flare day.
Art washes away from the soul the dust of everyday life.” ~Pablo Picasso – Featured on My Several Worlds for Art Therapy for Chronic Illness
How Art Can Help You Cope With Chronic Pain
Writing and creating art allows me to cope with my pain and it distracts me from what is happening with my body.
The pain is still present, but the process of creating overrules the signals that my body is sending to my brain.
The mediums I have used for artwork all my life are:
- Writing – I’ve been writing professionally for many years, so I started creating a section here on this site to include information about chronic illness, and I went back to the basics with creating art. I’ve also written and published a number of books and I work professionally as a ghostwriter. (This site should illustrate my love for writing as well.)
- Music – I was classically trained as a child and I was once a professional singer. I’ve done album work, radio work, and I’ve sung on stage with bands all across China. Although chronic illness has affected my voice to an extent, I still love to sing. On days when I don’t have chest wall swelling, I love to sing. Here is a song I did a few years ago with a full band. We only rehearsed once. That was the last time I was able to get up on stage and move a bit.
- Painting – Water color and rock painting (See above for a painting I did in 2003 using Chinese water color techniques.
- Jewelry – I’m been making jewelry for over 20 years. Many of my readers probably don’t know that I worked in the jewelry industry for many years. I made enough money from my jewelry sales and in my artisan’s group in Lanark Valley to move to China. I still make jewelry when my hands are ok and allow me to work in fine detail.
- Coloring – I got into coloring simply because it’s a mindless activity that helps distract me from pain. I’m on my 13th flare book and I do a video for each one. Each book represents 3-4 months of flare activity.
- Flower arranging – These days, I do a lot of flower arranging. I like the idea of working with living art by creating Japanese flower arrangements that change each day. This form of art has been in my family on my mother’s side for many years, passed down from my grandmother to my mother and finally to me.
- Journaling – The stacks of journals at home in my parents’ basement and the journals I have from my travels through Asia tell some interesting tales.
- Photography – I’ve honed my photography skills over the past decade and I still earn money from selling my prints and from freelance writing. I took some lighting classes and really got into a lot of photography before my DSLR gear got too heavy to carry. Now I shoot with a Sony A6000 and it serves me just as well with a fraction of the weight. (All the feature covers you see here on My Several Worlds is my photography work.)
Here is an example of a coloring book that I call FLARE BOOKS for Chronic Illness.
This was my 10th FLARE BOOK. Each book represents 2-4 months of flare activity. This was a special book to color because it was written and designed by one of my favorite authors, Jenny Lawson. It’s called You Are Here, and it’s about chronic illness.
It was a huge source of support for me when I was working on this book.
As of June 2020, I’ve completed 33 flare books from front to back. Then I rip the books up and use the pages as wrapping paper.
What is Art Therapy?
Art therapy – or as I like to tag it in my Instagram feed – ‘art for arthritis‘ or ‘art for chronic illness‘, is a secondary health approach that combines artwork and creativity by patients.
It helps patients to cope with the enormity of what is happening to them, allows them to express their emotions or pain, and helps patients by distracting them from pain, which allows them to cope with their daily challenges with chronic illness.
There are days we might not be able to do much, but the satisfaction creating something always creates some joy and happiness. I use art for mental health, distraction, and it is a great mind and body technique that helps immensely with chronic pain.
An additional benefit to doing art therapy is for its use in allowing chronic pain sufferers to show their pain through art, whether it’s drawing, painting, sculpting or stitching.
This Is What My Pain Looks Like
Pain can’t be seen and thus it is almost impossible to measure and assess. You can’t see pain, so there is no way to really speak about it.
Words can be empty, but artwork aptly illustrates the rage, sorrow, and grief that many patients go through daily. Art elicits an emotional response from viewers. No words are necessary.
Many people have experienced acute pain, but most people do not understand what it is like to live with chronic pain on a permanent basis or how it affects people mentally and physically. Creating art can often stave off feelings of worthlessness and it helps the patient to fight against the loss of losing their quality of life.
We can learn more about the process of coming to terms with pain through art, especially in terms of losing your identity to pain, redefining yourself, identifying with other people, and remaining hopeful on your journey through chronic illness.
Even the simple act of drawing pain in your body can be helpful by allowing other people to understand how you feel. Reds and oranges can illustrate heat or burning sensations, while blues and grays can recreate how your legs feel when they go numb or it can illustrate your mood that day.
I started off my rock paintings as a representation of my chronic pain. Then I moved to Ikebana and flower arranging and I found that even more satisfying.
In the red and yellow arrangement above, I added a bring red Wang Peony to illustrate the throbbing of my heart, chest and body. Then I added yellow freesia to illustrate the fire and inflammation burning through my body. The black bowl at the bottom shows that I was surrounded in darkness that day. Overall, this piece showed anger and I illustrated my anger in colors of red and yellow to show my emotions.
When I completed this arrangement, I felt a brief hot flash of sadness, but then I felt strong and empowered.
I knew then that I could take any emotion and channel it into something that validated how I was feeling, but I also had the power of turning that negative emotion into something bright and beautiful.
I can also use this arrangement to say that this is what my pain looks like and this is how I was feeling that day. The sharp spikes of the green leaves and the yellow freesia going every way illustrate that this is pain coursing through my body, hot, stabbing, and fierce.
Being able to illustrate this in a visual way made me feel that my pain was more real. I can now use this ikebana arrangement as an advocacy tool or for teaching how to evoke emotions in something as simple as a flower arrangement.
Do I Need To Take An Art Class to Begin Art Therapy?
You do not need to be an artist to do art therapy. Artistic ability has nothing to do with art therapy. This is a process you can do on your own and feel good about, as long as you stay open to trying to create expressive pieces of artwork.
Art therapy offers distraction, relaxation, it helps us cope, and it helps us with self-management and self-care in chronic illness. ~Carrie, My Several Worlds
Art, as mentioned above, can also bring other emotions to the surface and these emotions can be noted and discussed with your therapist during your next session. Art can also help you to feel ready and feel supported about your feelings and emotions.
It’s a powerful tool for communication and self expression and it ultimately helps with improving physical, emotional and mental states of people of all ages.
You don’t need to take a class to get started unless you’re interested in going to class. Art can be done at home or it can be done in class – but the bottom line is that the ultimate goal of your artwork should be to help you be more relaxed, calm, and creative.
Art allows you to change what is in the picture and it is an empowering tool that helps us build on self-confidence, strength, and resilience while managing pain.
Art projects, no matter what form of art you choose, whether it’s writing, sketching, knitting, pottery making or anything else, can help release stress.
I’ve found that when I am focused on my art, I’m less focused on my pain and more focused on the creative process.
Raising awareness by sharing the art of chronic pain is something we should all try, whether it’s good or not. I hope it brings you some joy and some inspiration to be creative and let your pain go for a while.
Stay tuned, because I have a new series coming up on artists that are doing art therapy for chronic illness, and you’re going to LOVE my first artist! She’s a very talented woman who has been creating art to illustrate her pain for many years and she’s one of the greatest gals I know.
MY SEVERAL WORLDS
ART THERAPY FOR CHRONIC ILLNESS SERIES
By exploring your pain visually through art, you might even be able to see some patterns in what is triggering your pain. ~ Carrie Kellenberger, My Several Worlds
Art Therapy for Chronic Illness – Karen Swank-Fitch Interview
Ankylosing Spondylitis and Fibromyalgia
Art Therapy for Chronic Illness – Rachael Nicholson
Art Therapy For Chronic Illness – Jennifer Walker
RA, Fibromyalgia, Osteoarthritis, Depression, SPD
Art Therapy for Chronic Pain – Jeanne Trend-Hill
Crohns, Colitis, and Osteoporosis
This post is part of the April link party with Sheryl from A Chronic Voice. This month’s prompts are:
- Marveling at the beauty of art.
- Splurging on nature in my home through the art of ikebana.
- Continuing on my creative journey.
- Balancing my life with projects I can do at home when I’m housebound.
- Investing in my future with art by using it as a tool to assist me when I’m in pain.