Today marks exactly two years since I started taking Enbrel to help with pain and inflammation from Ankylosing Spondylitis, aka axial spondyloarthritis. In all this time, I’ve been paying out of pocket for Enbrel. My monthly bill for 8 injections is 30,000NT per month. As you can guess, the stress of coming up with this […]
Learning About Invisible Disabilities with Carrie at MySeveralWorlds.com
Learn more about how patients live with Invisible Disabilities and why we need more awareness.
You’ll never think of the cost of chronic illness and maintaining an income until it happens to you. Here’s a breakdown of what Spoonies think about.
Most chronically ill patients struggle to find purpose and meaning in life, and a great number of us do so with advocacy work. Some of us also seek volunteering opportunities, so today’s post is about finding the right kind of volunteer work when you are chronically ill.
Fibromyalgia Awareness Day is May 12. My Several Worlds has won a Best Fibromyalgia Blog award again. Today post is a tribute to my favorite fibro advocates in the world.
May Momentum and World MECFS Day – My story with MECFS and some information from experts who have found that COVID19 and MECFS intersect as viral illnesses.
Life with COVID19 and Chronic Illness in Taiwan Update – Life in Taiwan during a global pandemic and having to visit a hospital in Taiwan each month.
Art Therapy for Chronic Illness Interview with Rachael Nicholson on My Several Worlds.com. My name is Rachael. I’m an artist, writer and chronic illness warrior. I hope people look at my work and get lost in it and escape from the pain of life in the same way I do.
Chronic Fatigue Syndrome: I Am One of the Millions Missing – When I have a Grey Day, aka a Missing Day, my ME/CFS hits overdrive and I go missing. Where do I go?