What Happens When You Stop Taking Your Meds Cold Turkey

What Happened When I Stopped Taking My Meds

Today marks exactly two years since I started taking Enbrel to help with pain and inflammation from Ankylosing Spondylitis, aka axial spondyloarthritis. In all this time, I’ve been paying out of pocket for Enbrel. My monthly bill for 8 injections is 30,000NT per month. As you can guess, the stress of coming up with this […]

Invisible Disabilities Awareness

Invisible Disabilities Awareness – Did You Know?

Learning About Invisible Disabilities with Carrie at MySeveralWorlds.com

Learn more about how patients live with Invisible Disabilities and why we need more awareness.

The Cost of Chronic Illness and Maintaining and Income When You Are Chronically Ill by My Several Worlds

The Cost of Chronic Illness and Maintaining An Income When You Are Chronically Ill

You’ll never think of the cost of chronic illness and maintaining an income until it happens to you. Here’s a breakdown of what Spoonies think about.

Advocacy Work and Chronic Illness

Advocacy and Volunteer Work When You Are Chronically Ill

Most chronically ill patients struggle to find purpose and meaning in life, and a great number of us do so with advocacy work. Some of us also seek volunteering opportunities, so today’s post is about finding the right kind of volunteer work when you are chronically ill.

May Momentum World MECFS DAY - My Story by Carrie Kellenberger

May Momentum and World MECFS Day on May 12 – MILLIONS MISSING

May Momentum and World MECFS Day – My story with MECFS and some information from experts who have found that COVID19 and MECFS intersect as viral illnesses.

Coping with Chronic Illness in Taiwan During COVID19

Life with COVID19 and Chronic Illness in Taiwan Update: April 2020

Life with COVID19 and Chronic Illness in Taiwan Update – Life in Taiwan during a global pandemic and having to visit a hospital in Taiwan each month.

Art Therapy Interview

Art Therapy Interview with Rachael Nicholson

Art Therapy for Chronic Illness Interview with Rachael Nicholson on My Several Worlds.com. My name is Rachael. I’m an artist, writer and chronic illness warrior. I hope people look at my work and get lost in it and escape from the pain of life in the same way I do.

Chronic Fatigue Syndrome Awareness

Chronic Fatigue Syndrome: I Am One of the Millions Missing

Chronic Fatigue Syndrome: I Am One of the Millions Missing – When I have a Grey Day, aka a Missing Day, my ME/CFS hits overdrive and I go missing. Where do I go?