Today marks exactly two years since I started taking Enbrel to help with pain and inflammation from Ankylosing Spondylitis, aka axial spondyloarthritis. In all this time, I’ve been paying out of pocket for Enbrel. My monthly bill for 8 injections is 30,000NT per month. As you can guess, the stress of coming up with this […]
October 12 – It’s World Arthritis Day! I’ve been living with Axial Spondyloarthritis (Ankylosing Spondylitis) and osteoarthritis for over a decade. Last week I found out I have ANOTHER arthritis diagnosis! Ta-da! My rheumy has decided I have Psoriatic Arthritis! Guess what? AS and PsA are subsets of Spondyoarthropathies. I didn’t even know it’s possible […]
Learning About Invisible Disabilities with Carrie at MySeveralWorlds.com
Learn more about how patients live with Invisible Disabilities and why we need more awareness.
You’ll never think of the cost of chronic illness and maintaining an income until it happens to you. Here’s a breakdown of what Spoonies think about.
Most chronically ill patients struggle to find purpose and meaning in life, and a great number of us do so with advocacy work. Some of us also seek volunteering opportunities, so today’s post is about finding the right kind of volunteer work when you are chronically ill.
Fibromyalgia Awareness Day is May 12. My Several Worlds has won a Best Fibromyalgia Blog award again. Today post is a tribute to my favorite fibro advocates in the world.
May Momentum and World MECFS Day – My story with MECFS and some information from experts who have found that COVID19 and MECFS intersect as viral illnesses.
Coping with stress and chronic illness during a global pandemic is rough. But is it much different from how chronically ill patients were already living?
Life with COVID19 and Chronic Illness in Taiwan Update – Life in Taiwan during a global pandemic and having to visit a hospital in Taiwan each month.
Written in honor of World Mental Health Awareness Day and World Arthritis Day 2019 – Learning to love your chronically ill body is possible. Here are some things to remember.