What Happens When You Stop Taking Your Meds Cold Turkey

What Happened When I Stopped Taking My Meds

Today marks exactly two years since I started taking Enbrel to help with pain and inflammation from Ankylosing Spondylitis, aka axial spondyloarthritis. In all this time, I’ve been paying out of pocket for Enbrel. My monthly bill for 8 injections is 30,000NT per month. As you can guess, the stress of coming up with this […]

October 12 is World Arthritis Day

World Arthritis Day – Why It Matters To Me – Arthritis Everywhere

October 12 – It’s World Arthritis Day! I’ve been living with Axial Spondyloarthritis (Ankylosing Spondylitis) and osteoarthritis for over a decade. Last week I found out I have ANOTHER arthritis diagnosis! Ta-da! My rheumy has decided I have Psoriatic Arthritis! Guess what? AS and PsA are subsets of Spondyoarthropathies. I didn’t even know it’s possible […]

Invisible Disabilities Awareness

Invisible Disabilities Awareness – Did You Know?

Learning About Invisible Disabilities with Carrie at MySeveralWorlds.com

Learn more about how patients live with Invisible Disabilities and why we need more awareness.

The Cost of Chronic Illness and Maintaining and Income When You Are Chronically Ill by My Several Worlds

The Cost of Chronic Illness and Maintaining An Income When You Are Chronically Ill

You’ll never think of the cost of chronic illness and maintaining an income until it happens to you. Here’s a breakdown of what Spoonies think about.

Advocacy Work and Chronic Illness

Advocacy and Volunteer Work When You Are Chronically Ill

Most chronically ill patients struggle to find purpose and meaning in life, and a great number of us do so with advocacy work. Some of us also seek volunteering opportunities, so today’s post is about finding the right kind of volunteer work when you are chronically ill.

May Momentum World MECFS DAY - My Story by Carrie Kellenberger

May Momentum and World MECFS Day on May 12 – MILLIONS MISSING

May Momentum and World MECFS Day – My story with MECFS and some information from experts who have found that COVID19 and MECFS intersect as viral illnesses.

Coping with Stress and Chronic Illness - Life During a Global Pandemic

Coping With Stress And Chronic Illness – Life During a Global Pandemic

Coping with stress and chronic illness during a global pandemic is rough. But is it much different from how chronically ill patients were already living?

Coping with Chronic Illness in Taiwan During COVID19

Life with COVID19 and Chronic Illness in Taiwan Update: April 2020

Life with COVID19 and Chronic Illness in Taiwan Update – Life in Taiwan during a global pandemic and having to visit a hospital in Taiwan each month.

Loving Your Chronically Ill Body - Tips for Living with Chronic Illness by My Several Worlds

Learning to Love Your Chronically Ill Body

Written in honor of World Mental Health Awareness Day and World Arthritis Day 2019 – Learning to love your chronically ill body is possible. Here are some things to remember.