Walking for Ankylosing Spondylitis is challenging for me with fibromyalgia and MECFS to deal with as well. But May is here. Time for change!
Tag: health advocacy
What Happened When I Stopped Taking My Meds
Today marks exactly two years since I started taking Enbrel to help with pain and inflammation from Ankylosing Spondylitis, aka axial spondyloarthritis. In all this time, I’ve been paying out of pocket for Enbrel. My monthly bill for 8 injections is 30,000NT per month. As you can guess, the stress of coming up with this […]
World Arthritis Day – Why It Matters To Me – Arthritis Everywhere
October 12 – It’s World Arthritis Day! I’ve been living with Axial Spondyloarthritis (Ankylosing Spondylitis) and osteoarthritis for over a decade. Last week I found out I have ANOTHER arthritis diagnosis! Ta-da! My rheumy has decided I have Psoriatic Arthritis! Guess what? AS and PsA are subsets of Spondyoarthropathies. I didn’t even know it’s possible […]
8 Women in Pain Health Bloggers You Should Follow
In honor of September being Pain Awareness Month, I’ve kicked the month off with a post featuring 8 women in pain health bloggers to follow.
Chronic Fatigue Syndrome: I Am One of the Millions Missing
Chronic Fatigue Syndrome: I Am One of the Millions Missing – When I have a Grey Day, aka a Missing Day, my ME/CFS hits overdrive and I go missing. Where do I go?
Letting Go With Chronic Illness Doesn’t Mean Giving Up
Letting Go with Chronic Illness – Learn to accept what you need and don’t need with chronic illness. Growth comes from making room for new things.
Fibro? What? Kicking Fibromyalgia To The Curb (Not Really)
My struggle with the severe and debilitating symptoms of Fibromyalgia in Taiwan as a Canadian expat.