Describing Chronic Pain - Quotes from Pain Patients

Chronic Pain Quotes That Pain Patients Can Relate To

Chronic pain quotes that pain patients can relate to – When life has you down and you’re not sure if you have words to describe your pain, you can trust that someone somewhere has helped. Chronic pain quotes like these let chronic pain patients know they’re not alone.

What Happens When You Stop Taking Your Meds Cold Turkey

What Happened When I Stopped Taking My Meds

Today marks exactly two years since I started taking Enbrel to help with pain and inflammation from Ankylosing Spondylitis, aka axial spondyloarthritis. In all this time, I’ve been paying out of pocket for Enbrel. My monthly bill for 8 injections is 30,000NT per month. As you can guess, the stress of coming up with this […]

October 12 is World Arthritis Day

World Arthritis Day – Why It Matters To Me – Arthritis Everywhere

October 12 – It’s World Arthritis Day! I’ve been living with Axial Spondyloarthritis (Ankylosing Spondylitis) and osteoarthritis for over a decade. Last week I found out I have ANOTHER arthritis diagnosis! Ta-da! My rheumy has decided I have Psoriatic Arthritis! Guess what? AS and PsA are subsets of Spondyoarthropathies. I didn’t even know it’s possible […]

Invisible Disabilities Awareness

Invisible Disabilities Awareness – Did You Know?

Learning About Invisible Disabilities with Carrie at MySeveralWorlds.com

Learn more about how patients live with Invisible Disabilities and why we need more awareness.

Suggestions for people who want to help someone living with chronic pain

How To Be A Friend To Someone Living With Chronic Pain

I’m often asked how friends can support me or other patients living with chronic pain or chronic illness. This article introduces ways that you can help people like me. How to Help Someone Living with Chronic Pain If you know someone who is living with chronic pain, like most people the instinct to help is almost […]

The Cost of Chronic Illness and Maintaining and Income When You Are Chronically Ill by My Several Worlds

The Cost of Chronic Illness and Maintaining An Income When You Are Chronically Ill

You’ll never think of the cost of chronic illness and maintaining an income until it happens to you. Here’s a breakdown of what Spoonies think about.

Advocacy Work and Chronic Illness

Advocacy and Volunteer Work When You Are Chronically Ill

Most chronically ill patients struggle to find purpose and meaning in life, and a great number of us do so with advocacy work. Some of us also seek volunteering opportunities, so today’s post is about finding the right kind of volunteer work when you are chronically ill.