Walking for Ankylosing Spondylitis is challenging for me with fibromyalgia and MECFS to deal with as well. But May is here. Time for change!
Tag: Ankylosing Spondylitis
International Day of Persons with Disabilities in Taiwan – 3 December
Happy International Day of Persons with Disabilities in Taiwan! I’ve seen zero coverage in Taiwan and I hope this post raises some awareness for the disabled community in Taiwan.
Chronic Pain Quotes That Pain Patients Can Relate To
Chronic pain quotes that pain patients can relate to – When life has you down and you’re not sure if you have words to describe your pain, you can trust that someone somewhere has helped. Chronic pain quotes like these let chronic pain patients know they’re not alone.
World Arthritis Day – Why It Matters To Me – Arthritis Everywhere
October 12 – It’s World Arthritis Day! I’ve been living with Axial Spondyloarthritis (Ankylosing Spondylitis) and osteoarthritis for over a decade. Last week I found out I have ANOTHER arthritis diagnosis! Ta-da! My rheumy has decided I have Psoriatic Arthritis! Guess what? AS and PsA are subsets of Spondyoarthropathies. I didn’t even know it’s possible […]
How To Be A Friend To Someone Living With Chronic Pain
I’m often asked how friends can support me or other patients living with chronic pain or chronic illness. This article introduces ways that you can help people like me. How to Help Someone Living with Chronic Pain If you know someone who is living with chronic pain, like most people the instinct to help is almost […]
The Cost of Chronic Illness and Maintaining An Income When You Are Chronically Ill
You’ll never think of the cost of chronic illness and maintaining an income until it happens to you. Here’s a breakdown of what Spoonies think about.
Advocacy and Volunteer Work When You Are Chronically Ill
Most chronically ill patients struggle to find purpose and meaning in life, and a great number of us do so with advocacy work. Some of us also seek volunteering opportunities, so today’s post is about finding the right kind of volunteer work when you are chronically ill.
Coping With Stress And Chronic Illness During a Global Pandemic
Coping with stress and chronic illness during a global pandemic is rough. But is it much different from how chronically ill patients were already living?
Life with COVID19 and Chronic Illness in Taiwan Update: April 2020
Life with COVID19 and Chronic Illness in Taiwan Update – Life in Taiwan during a global pandemic and having to visit a hospital in Taiwan each month.
BELIEVE US: Invisible Illness Awareness Week
BELIEVE US: Invisible Illness Awareness Week 2019 – How to show compassion when someone says they are disabled or have an invisible illness.