September is Pain Awareness Month. I’ve kicked this month off by featuring eight women in pain health bloggers you should follow. This list of strong, smart, resilient women is not in any particular order EXCEPT for A Chronic Voice. Sheryl in my first place spot for many reasons as listed below.
Read on to find out more about these badass women in pain who share their stories despite their pain.
There are many woman out there that I was not able to include in this post. I’m thinking of you.
1. Sheryl Chan at A Chronic Voice
I keep saying this and I’m going to shout it for as long and as loud as I can! Sheryl’s blog is required reading for all chronic pain and chronic illness patients.
Sheryl has many skillsets, but she is an exceptionally talented writer and web developer. She is an expert at building communities. If you’re not in her groups, you’re missing out. Follow her blog and jump into her monthly chronic illness writing prompts. You’ll meet Sheryl as well as the dozens of other women in pain who participate in this monthly meet-up online. There is so much information on A Chronic Voice, she should have her own magazine.
Sheryl is the only chronic illness blogger in Asia that I have met in person. We hit it off together like we are the oldest of friends. It was so nice to sit and talk with someone who just gets it.
Sheryl describes her body as ‘a bit of mess’, but you would never know how much she is going through by looking at her. (Another reason yet again to never judge us by how we look.) She had ‘a mini stroke at age 14, multiple blood clots in the lungs and legs, a faulty heart rhythm, a gore-tex band for a heart valve, seizures, scars all over my body from various surgeries, and have never had a break from Lupus in over a decade, just to name a few.’
A Chronic Voice’s mission statement:
“My aim with this site is to raise awareness about lifelong illnesses from various perspectives. Every patient, illness and how they experience pain is different. There is no single technique or approach to managing these symptoms, but every tool in the toolbox helps.”Sheryl Chan, A Chronic Voice
2. Shruti Chopra at All Things Endometriosis
Shruti is a health blogger living in Mumbai, India. This woman is strong, kind, and always ready with an encouraging word and helping hand.
Shruti has been living with endometriosis for 24 years. She also suffers from adenomyosis, Ehlers Danlos Syndrome, fibromyalgia and other conditions, and she posts about all of them regularly. She has created wonderful resource lists that fellow women in pain can use and she creates great content that breaks everything down simply and efficiently.
Shruti posts across all channels, so if you like your content delivered as a podcast or on YouTube, she’s got you covered as well as through her blog, FB, Twitter, IG, Pinterest. Although Shruti is fairly new to the blogging scene, you’d never know it based on her content!
I’m Shruti Chopra, a British Indian living in Mumbai, India. All Things Endometriosis is that space where I can explain not just the various difficulties I faced as a patient, but what I tried to do about it – what worked and what did not.Shruti Chopra, All Things Endometriosis
3. Katie Clark at Painfully Living
Katie blogs about her fibromyalgia diagnosis AND she’s a retired educator, so you know her content is going to be great and educational. In addition to living with fibro, Katie also suffers from interstitial cystitis, acid reflux, and IBS. Although she is recently diagnosed, Katie has had health problems since she was a child. Like so many other women in pain, she didn’t know that the pain she was experiencing wasn’t normal.
As a lifetime learner and huge reader, Katie and I connected instantly on a deep level. She’s a massive cheerleader and very supportive, always offering a kind word to all. Keep an eye on this up and coming health blogger. Katie Clark is a force to be reckoned with!
This is the beginning of my journey with fibromyalgia. It’s been one of many ups and downs, turns and twists, but ever moving forward, living my life as FULLY as I can.Katie Clark, PainFULLY Living
4. Claire at Through The Fibro Fog
If I had to choose someone to cook for me, even though I’d never dare ask a friend to do so, especially one that is ill, I’d choose Claire!
But I’ll make do with her amazing low histamine recipes instead. Extra props for consistently appealing to the Canadian in me with her maple syrup recipes. Just looking at her recipes makes me hungry.
Cooking aside, Claire is an excellent resource for information about many health conditions. Claire has been diagnosed with fibromyalgia, dysautonomia, hEDS, MCAS and interstitial cystitis. (As I’ve said many times on MSW, once you get one, the party keeps growing!) Her site offers great tips and ideas for life with chronic illness all wrapped up in healthy recipes.
Get your yum on and stop by to say hi to Claire at Through The Fibro Fog.
I post aspects of my daily life living with fibromyalgia and my other chronic conditions, my experiences of different medical tests and treatments, which I hope is helpful to others, and I also facilitate discussion of all things related to having chronic illness. I hope that I do this with a mix of humour and seriousness that is appropriate to the situation. Come over and join the conversation, and let’s help each other along the way!Claire, Through The Fibro Fog
5. Alison Hayes at Thriving While Disabled
Alison has been living with FND (functional neurological disorder) for most of her life. She was considered a special needs child because her fine motor skills are affected. She has been living with depression since the age of 9 and has been through many challenging situations, which she shares about openly on her site.
What makes Alison remarkable, aside from being an amazing human being, is her empathy for others and her ability to speak so well about it during her live videos.
Honestly, I could never ever do what she does. She speaks so eloquently and knowledgeably about each topic she covers. And she’ll tackle any topic! Alison uses her site to help as many people as possible and gives them a platform to share their own stories. I highly recommend dropping by to take a look at her content.
I am very good at recognizing problems, breaking them down into manageable chunks, and then solving them. I want to help you (and others) who are dealing with physical, emotional, or mental health challenges to handle life’s challenges on a daily, weekly, monthly, and yearly basis. I want to help you to improve your life, connect with your sense of purpose, and celebrate every step of your journey!Alison Hayes, Thriving While Disabled
6. Lee Good at Fibro Files
I can’t believe I’ve just found Fibro Files in the past few months and that’s thanks to Katie at ThankFULLY Living.
Lee provides a lot of information on her site while simultaneously running several massive groups for fibro patients and fibro bloggers. I keep digging deeper and the person at the end of it is always Lee!
She stresses using humor as a way of dealing with life’s ups and downs, while also reminding her followers regularly that laughter and humor IS the best medicine. I’ve enjoyed my chats with her and admire her skills in nurturing communities of patients.
Stop by her site for a laugh while getting a good side dose of up-to-date information about life with chronic pain.
If you are facing Fibromyalgia you will find lots of information here to help you understand the science behind it, the treatments available, including alternative treatments,coping strategies and my personal journey with it.Lee Good, Fibro Files
7. Eileen Davidson at Chronic Eileen
Eileen got her Rheumatoid Arthritis diagnosis just before she turned 30. Aside from me, she’s the only other arthritis blogger on this list. She has been writing about her battle with RA since receiving her diagnosis in 2015. Her mission is to help educate others about arthritis.
Eileen covers a lot of topics on her site, covering everything from her awareness campaigns for arthritis, the importance of exercise and healthy eating, and how she copes with living with a disabling arthritic condition while raising her son. She’s a fellow Canadian, like me, and she probably doesn’t know that I’ve been following her for much longer than she thinks!
My diagnosis taught me the importance of regular exercise, eating a healthy vibrant diet best suited for you and to really listen to your body. Sticking to my medications, my numerous doctors advice, educating myself through research and workshops is how I got here today – sick but healthier at the same time. Self-care has become my full time job but it is what I do to have quality of life with rheumatoid arthritis. While there may be no cure for my disease there have been advances in treatments and research which leads a lot of hope for patients living like me.Eileen Davidson, Chronic Eileen
8. Rhiann Johns at Brain Lesion and Me
Rhiann is so sweet and she does so much for the community. I have no idea how she produces such great content while also generously sharing everyone else’s work across her channels, but she does! I think she is amazing.
Rhiann documents her life living with a neurological disorder known as FND (Functional Neurological Disorder). Every aspect of her life includes neurological symtoms such as weakness in her legs, dizziness, and vertigo. She also writes openly and honestly about the most painful parts of living with FND.
I was diagnosed with what is called a long-standing brain stem lesion and spastic paraparesis. Which basically means that I have scarring on the brain stem which, for me causes chronic dizziness with frequent episodes of vertigo with visual disturbances. The spastic paraparesis causes stiffness and weakness in the legs, making it uncomfortable when walking and means that I am unable to stand for very long. Although, I was only diagnosed a few years ago, I have had this since I was born, although the doctors are unsure of how it happened.Rhiann Johns, Brain Lesion and Me
Surprise blogger! ME!
Since you know My Several Worlds, I’ll encourage you instead to follow me on my social media channels where I feature other chronic illness bloggers and advocates regularly.
- Facebook: Follow my public profile page
- Facebook: My Several Worlds
- Twitter: @globetrotteri
- Instagram: Follow my public profile page at https://www.instagram.com/carriekellenberger/
- Instagram: Follow my public profile page at https://www.instagram.com/carriekellenberger/
- Instagram: My Several Worlds
- Pinterest: https://www.pinterest.com/myseveralworlds/
That’s it! I hope you found today’s post helpful. Did you find some new, incredible patient leaders to follow?
Make sure to click that pin button for these talented and smart women in pain health bloggers!