Treating Ankylosing Spondylitis with Chinese Medicine and Acupuncture

Today is World Autoimmune Arthritis Day, so I thought I’d write a little about the secondary treatments that I’ve been using over the past few months. I live in Taiwan, and I’ve read that many AS and arthritis patients respond really well to treatments like acupuncture and Chinese medicine.

My Story with Treating Ankylosing Spondylitis with Chinese Medicine

I was diagnosed with an autoimmune disorder called Ankylosing Spondylitis in Taipei in February 2009 after suffering from a variety of strange symptoms over a span of ten years.

I might not look outwardly sick, but inside my body there is a maelstrom being waged each and every day. My body is in a  systemic and chronic cycle of inflammation, and there is no escaping it. Ankylosing Spondylitis is a horrible and painful autoimmune disease. I happen to be one of millions of AS sufferers that can be found all over the world. I also have Fibromaylgia.

If my story here helps one person, then it has been worth it. There is no need to suffer silently with this disease.

I’ve tried everything to try and reduce the chronic and systemic inflammation that I’ve been experiencing with these diseases. I’ve tried different kinds of medications, I’ve done detoxes and elimination diets. I switched to an anti-inflammatory diet in November 2013, and I still didn’t have any success in alleviating my symptoms.

One bout of AS related complications started in early October 2012 and progressed through to early March, and despite my best efforts to bring things under control, my symptoms continued to worsen through November and December 2012.

My ears, in particular, have given me an enormous amount of trouble. I was going through a vicious cycle of having my ear canals swell and weep with infection and then the skin would dry up and crack. This was happening every six days for six months. It really affected my hearing. This spread to my eyes in January 2013, and that’s when I really started to get worried.

In late January, chronic fatigue set in and I was just miserable. Fatigue is a major complaint among patients with inflammatory rheumatic diseases, and it can be related to things such as loss of sleep from physical discomfort. It can also be a by-product of the disease itself. When inflammation is present in your body, your body uses enormous amounts of energy to deal with it. It took me hours to get going in the morning. My alarm would go off and I’d lie in bed waiting to have enough energy to get out of bed and get a start on my day.

Shortly after Chinese New Year in February 2013, I was ending every single day in tears. It was just exhausting. A good friend of mine, who worked as an acupuncturist and Chinese herbal medicine doctor in the States, suggested that I go to see a famous Chinese medicine doctor in Taipei by the name of Dr Lee Chen Yu.

Dr Lee is famous for successfully treating a number of brain and spine diseases such as stroke and cerebral palsy. He has also been very successful in treating people with chronic autoimmune illnesses. This was not my first time seeking out help from a TCM doctor. I was treated with acupuncture in mainland China for AS complications in 2003, but I didn’t find that the treatments helped. I also had an experience with cupping and scraping in Taipei in 2007. (Click on the links to read about my experiences and view photos from those sessions.)

I have run the gamut in terms of treatment options, and Dr Lee was the only person left that I could turn to for help.

READ:  Fibromyalgia Awareness Day on May 12 and Chronic Voices


My Treatment Plan with Dr Lee Chen Yu

My first treatment with Dr Lee began on March 4, 2013. Dr Lee’s office is on the 4th floor of an old building that smells like it has been permanently doused in herbal solutions. The front room houses an old beat-up desk and a long counter with staff busily measuring out different kinds of herbs on old fashioned hand scales. The herbs are then funneled into a special bag that is used to steep the tea. To the right of the front door, there are several narrow cots laid out for acupuncture treatment. The smell of burning incense is strong, but it does nothing to detract from the overwhelmingly musty smell of steeped herbs. It’s a pungent smell that immediately sets my stomach off in spasms of queasiness.

I describe my problems to an American who has been studying with Dr. Lee for eight years. Doctors come from all over the world to study with Dr. Lee. The man who is helping me is just one of about half a dozen foreign doctors in the clinic. The doctor is very patient with me as a I bring him up to speed on my medical history. He tells me that they had successfully treated other patients with AS, and that gave me pause for thought. I was there to relieve the pain and inflammation that had developed in my eyes and ears, and this man was telling me that they could not only help with my eyes and ears, but they could also get me off my AS medication completely.

Then I meet with Dr. Lee. He seems like a kind man, and he’s got a great rumbling laugh that immediately makes me feel comfortable with him. We go over my symptoms with Dr Lee as he looks me over and measures my pulse with his thumbs. He tells me that all of my problems are interconnected and asks me to begin treatment immediately. He tells me will take a long time and asks me if I’m ready to commit.

I say yes, and he begins to outline my treatment. I’m to drink his herbal tea three times a day and then take a round herbal pill once a day. My physical treatment begins immediately with bleeding and acupuncture. Yes, you read that right.

Week One

What follows can only be described as an unpleasant experience. The treatment begins with bleeding. He starts by pricking the skin in front of my swollen ears twice with a pin. He then places a suction over the pricked area and draws the blood to the surface. Then he does this again at the top of my spine, on the inside of both wrists, and on the back of my knees. This, they say, helps to open up the meridian lines and draw out inflammation.

Next, the acupuncture treatment begins. Two needles are placed in the back of my head under my cranium, two in the tender part of skin between my thumb and forefinger, and two behind my knees. I experience immediate throbbing and discomfort, but only on the left side of my body. He leaves me there for 20 minutes. When the needles are taken out, the doctor pushes hard on those spots and then asks me to sit up slowly. I am immediately lightheaded. It felt like the room was moving away from me. Then I felt overwhelmingly tired and I wanted to cry. He asked me to sit for a few minutes and try to relax.

READ:  Self-Realizations From Living Abroad: I Can Do It

I leave while they are brewing my medicine and they tell me it will be delivered that evening. Since Dr Lee’s treatments aren’t covered under my National Health Insurance plan, I end up paying NT$4800 ($160USD) for my first session and a week’s worth of tea.

Week Two

The following week, I go back to the clinic for more bleeding and acupuncture. This time, I feel like I am going to throw up. The smell of incense keeps my stomach rolling for the duration of my visit, but when I sit up after the treatment is finished, I feel completely energized. I was up until 5am that day. I had so much energy that I ended up rearranging the kitchen cupboards until the wee hours of the morning.

I’m starting to suspect that acupuncture might not be a good treatment option for me. I’ve read that people who suffer from auto immune disorders can react in wildly different ways with acupuncture. It seems that I’m one of those people.

Meanwhile, my symptoms are getting much worse. My entire body was in overdrive. The inflammation within my body was being drawn to the surface, and I barely had enough energy to leave the house.

Week Three

My third week of treatment came and went with similar results. This time, the acupuncture treatment was extremely uncomfortable. When I got home, I was feeling really emotional and overly fatigued. I got home at 5pm and slept through until 9am the next day.

After discussing things with my husband, we decided that I was just too sensitive to acupuncture, and I decided to forgo that portion of the treatment plan and focus on drinking the tea three times a day.

Let me tell you, the herbal tea that I have to drink is the worst thing I’ve ever had to ingest in my entire life. It’s like drinking dirt. I have a very hard time keeping it down. Even now, six weeks later, I’m still having a hard time keeping it down. It’s a force of will to drink this stuff every day.

The tea makes my stomach extremely upset, and I feel queasy all the time. Certain smells sent me running for the bathroom. I wanted to quit from day one. It was really, really difficult for me to spent NT$4,800 a week on something that was making me so ill. I was just miserable, but the alternative was worse. I kept telling myself that I must be crazy to spend that much money on bleeding, acupuncture and medicine that makes me  violently sick, but I could tell that my symptoms were starting to improve towards the end of Week Three, so I stuck with it.

By the end of March, I had spent NT$24,000 ($800USD) on medicine and doctor visits in the month of March. NT$20,000 went to the clinic, the rest of it went to my regular doctor appointments.

Week Six

By Week Six, I started to notice a huge improvement in my energy levels. The inflammation was down everywhere in my body, my ears were almost back to normal, and I was able to go back to the gym.

Week Eight

My ears haven’t been this clear in over two years, and the skin rashes and eye infections are starting to slow down as well. Has the NT$40,000 in cash that I’ve spent on my treatment been worth it so far? In some ways, yes. I am noticing an improvement in my eyes and ears, and I’ve had more energy, but the problems I’ve had with my stomach haven’t been worth it.

READ:  Soultravelers3: Traveling with Soul

Now it’s May and we’re here at World AS Day, and I have to say that I’m feeling pretty good overall. I’m thankful that I stuck with the treatment that far, but during week nine, my husband and I decided that I should stop seeing Dr. Lee due to the fact that his teas were making me violently ill. My plan all along has been to pursue a plan that is covered by my insurance.

I have started seeing a doctor at the Taipei Chinese Medicine Hospital in Ximending. My visits and medicine are covered under Taiwan’s National Health care system. I pay NT$140 per visit and I’ve been seeing him since May. I take the medicine in a powder form, and haven’t experienced as much stomach discomfort. My doctor at the hospital speaks perfect English and he’s got the best bedside manner of any doctor I’ve met in Taiwan. He is also the only doctor to date that has actually touched my back during a flare to assess where the pain is located. I’ve been seeing him since May and I’m happy with the care I’m receiving although I’m not experiencing the bouts of energy that I had during my treatment with Dr. Lee.

I try to get to the gym regularly, but I’m still trying to learn my boundaries between too much exercise and the right amount. I’ll be able to do an hour of light yoga one day, for example, but power yoga sessions tend to hit me a day later and almost always put me into a cycle of inflammation. Some days I can jog, other days I can’t do more than 20 minutes on the bike. If I’m feeling fatigued in the slightest bit, I don’t go to the gym. And I’ve really started to notice a difference between good pain and bad pain. That’s key to working with this disease.

My rheumatologist believes that this is because my disease is progressing. I’ve recently been diagnosed with fibromyalgia, and he wants to bump me up to the next level of drugs. That  means going off of NSAIDs and going on steroid use – something that I’m really opposed to. Once you move to that level of treatment, there’s no going back, but with the number of symptoms that I’ve developed over the past six months, he feels it’s only a matter of time that this happens. Right now, I feel that I’m staving things off with the Chinese medicine. My ears and eyes have continued to improve, but the pain in my joints and muscle tissue has continued to yo-yo.

Seeing a TCM doctor has had its ups and downs, and while the treatment was harsh to begin with, I am happy with the results. Traditional Chinese medicine might not be an option for everyone, but so far, it has worked for me. The improvement in my ears and eyes alone has been worth it.

AS sufferers around the world will probably agree that relief of any kind from chronic pain and inflammation is a veritable gold mine and it’s meant to be cherished. You never know when life is going to give you a kick in the pants, and I’m determined to live mine to the fullest until the day that this disease rears its ugly head once more.


Spread the love

Post Author: Carrie Kellenberger

I'm a chronically ill Canadian who has been living in Asia since 2003. I moved from China to Taiwan in 2006. I'm an experienced businesswoman and have worked in many leadership positions in Asia. In addition to my own work, I've been writing professionally about Asia, travel and health advocacy since 2007, providing regular content to publishing companies and travel publications in Asia and North America. I started writing about my health journey in 2009 after being diagnosed with Ankylosing Spondylitis. In 2014, I was diagnosed with Fibromyalgia and ME/CFS, which came with other massive health issues. These diagnoses were the start of my journey as a health advocate and patient leader. Since then, My Several Worlds has been recognized worldwide as a top site for AS, fibromyalgia, and chronic illness by WEGO Health and Healthline.

20 thoughts on “Treating Ankylosing Spondylitis with Chinese Medicine and Acupuncture


    (September 21, 2013 - 12:46 pm)

    You seem to be one hell of a fighter to fly across the ocean to treat for AS. And how have you been lately? Are you still treating with accupunture and TENS unit?

    Let me introduce myself. I have been diagonised as RA and AS back in 1997 and was treated with N-SAID and steoroids. That time I was advised for TCM by my fellow friends and this practice obviously new in my country (Nepal), I had a go as advised but didn’t went well. May be that could have been at the increasing moments of pain.
    Then, I tried ayurvedeic treatment, homeopathy, shammans; and worshiped deities as that could have or may obstructed the path of recovery. But it all went for nothing. The inflammation would derive pain and it would be no ordinary as you have experienced yourself.
    Now, tired of taking medicine and abusing body with its side effects, I have decided to give it a go for TCM and your article really inspired me. Like yours, my treatment is arranged and corroleted wtih panchakarma(part of yoga) along with ayurvedic herbal medicines, and the first three weeks were progressive and pain and inflammation were reduced to nearly one -third.
    But, as the physios were introduced, in fourth week, my pain and inflammation level rose (not back to square) but enough to restrict my mobility. Currently, I am in six week, after stopping physios throughout week five, my pain is as in week three.
    The therapist are urging me to start doing physios to manageble state but I am in dual mind as I will have to bear the pain and if not when and how will I get better as to have my mobility. I know, I won;t be as good as I used too, but moderate mobility for walking without cruches and support is all I expect.
    My TCM doctor has suggested as by yours saying it will take prolong treatment.and it has been five weeks already. I wonder how many more weeks may it take? As you have been advised for steroids, what are your drugs taking prescribtion? or have you dropped all of them after your TCM regime? Please, adivise me If you could.
    Thanking you


      (October 19, 2013 - 4:32 am)

      Hi Milan,

      I’ve stopped doing my acupuncture sessions and I’m using traditional Chinese medicine and yoga along with my Western medicine prescription. I’ve been taking Chinese medicine since March 2013 and I’m still on Sulfasalazine twice daily. I really don’t want to move to the next class of drugs unless absolutely necessary. It’s a real roller coaster, isn’t it? I hope you’ve been able to find some relief.


    (March 25, 2014 - 6:42 pm)

    Carrie I had no idea you were dealing with an autoimmune disease! For the past year I’ve had misdiagnoses that led to what one doctor here believed was autoimmune and incurable. It’s been chronic pain and inflammation HELL. This “mystery illness” is the main reason I didn’t travel over my winter break (*heartbreaking*). I was actually going through a rough bout of it while I was in Taipei but I pushed through anyway. It wasn’t the greatest holiday. Anyway, it turns out my doctor had it all wrong and I’m dealing with something that’s definitely curable. However, since I went almost an entire year treating the wrong thing, it’s going to take time. I never thought I’d be dealing with a chronic pain condition at 28/29 years old. It’s horrible when you look healthy on the outside but are really suffering. (Also, I’ve been doing acupuncture weekly and it helps. LOVE that it’s so cheap here!!)

      Carrie Kellenberger

      (April 4, 2014 - 2:39 pm)

      Sorry for the late reply, Lisa. I was diagnosed in 2009, and it has been a constant battle for good health ever since. I was suffering through a flare while you were here as well. You can tell by my puffy face and my lack of energy. I’m usually MUCH more energetic than the night I met you!

      Chronic pain sucks. I’ve tried everything from cupping and acupuncture to Chinese medicine, reiki, massage, and good old-fashioned painkillers. Nothing really ever takes the edge off it though. I also suffer from Fibromyalgia, and other auto-immune related illnesses.

      It sounds like you’ve got a proper diagnosis and you’re dealing with things properly now. It took over a decade for me to get a proper diagnosis, and to this day, I still get looks from people who think I’m trying to cop out of something.

      Carrie Kellenberger

      (June 10, 2014 - 9:04 am)

      Sorry, Lisa. I didn’t realize I missed replying to your comment. If you’re going through this, I really feel for you. No one really understands what it’s like to suffer from chronic pain and inflammation unless they’ve actually been through it. One of the things I struggle with constantly when I’m flaring is convincing people that I’m really sick. For example, last summer I flared for 63 days. One of the last big events I attended last summer was the Cirque du Soleil show, and up until then, no one had really seen me in a full flare. They were shocked to see me looking so ill, but two weeks later, one of my friends couldn’t understand why I wasn’t over it. I felt really pressured to go out and do something with them, but I simply didn’t have the energy or strength to do it, and then I had to go through explaining all of it all over again. It sucks. I’m glad that you were able to get to the bottom of things, and it sounds like you’re on the path to recovery!


    (May 14, 2014 - 11:51 am)

    My husband was diagnosed with AS after 3years of pain. Chiropractic, massage, NSAIDs, acupuncture, exercise, and even narcotic pain killers gave him temporary relief. This week I learned about another therapy. Honey bee venom. Seems crazy but sting yourself with honey bees. Their venom has different properties than other bees. A friend of mine met an 80 year old man who was diagnosed with early onset RA and became wheelchair bound. Honey bees set him free and my friend knew him as an avid, active gardener and beekeeper who stung himself once a day. We have only just begun with my husband, but last night I had to almost carry him up our stairs and today his left SI joint was pain free after working through his morning stiffness. It is worth looking into. I wish you the best of luck!

    Vivek Nigam

    (September 21, 2014 - 10:49 am)

    Hi Guys,

    I am also suffering from AS. 3 years ago this disease was highly active in my body. I was completely on bed for almost 3 months. I got inflammation in my knees, shoulders, neck joint and hip joints. I was not able to sit even. I tried almost every therapy and all pathy’s. Nothing was working to me. Then i came to know about a herb and a vaidya who use to prepare medicine in powder form. I started taking that twice a day for 15 days. That too was not working , so i decided to stop that too. but after 2-3 days of stopping it i felt life was pretty good when i was taking that medicine. I started that again and in around 1-2 months i was in my office doing the same pathetic work again. My life started rolling again. I am continuing that medicine now also but once a day and 5 days a week. I am able to do all of my tough jobs, playing with my kids and bearing my wife.


      Carrie Kellenberger

      (September 23, 2014 - 10:10 pm)

      Thanks for dropping by and sharing your story, Vivek. I am really glad to hear that your treatment is working for you. Every pain free day is a blessing!

    Krista Sepp

    (November 18, 2014 - 1:36 am)

    Hi Sweetie, I’m 68 yr woman who has been through a WHOOOOLE lot in my life. What I have found to seriously help the pain is the mind. DON’T get me wrong. I have used my my Chinese/ Korean etc. They WORK! My daughter was grounded by the FAA & had to get her medical clearance ASAP. Cardiology shows serious problems with heart possible (stents) etc. Within 28 days she recievedher 1st Class Medical. Have 30 pages of test results. Lady at cardiac testing asked why was she there as even her urine was totally clear.Still is 2+ yrs still is. Our Asian DrLee @ Bejing Clinic Orlando Fl. Did Moxa, liquid formula & some acupunture cured her. I had both Menicus removed,wish I didn’t ,(accident case) so followed Lawyers directive. Anyway I have pix etc. Dr Lee did acupunture,cupping & formula. You should see what came out of my knees.even a piece cartilage. If hadn’t had help to get treatment,I would not be walking.. I was pain free also in hip spine neck.but those area need treatment. I had most ALL those things you mentioned I have plus& minus. Western medicine creates more problems. I am on Percocet helps pain,Gabapebtin for muscle pain helps. Insurance covers. Only reason not Dr. LEE,I DONT HAVE THE $$ Even though cheap to get treatments as I should. Plus I hate going by self. April is in Dallas,best is painful when u get serious treatment. Yr later I’ve had marvelous continued results. Law case so can’t say much. The mind thing is my point, when I’m traveling (free) pain different. At home soon as I stress even when I don’t know I am,lower back pain unsufferable. +++ other parts. Kidney Liver are ur engine & transmission. Had Papason in LA now deceased.learned this. I can tell stories galore about results 4 family.If u have right Dr. Even cancer can be cured. Mind work is IMPORTANT! I will b in tai pei 20 – 24. I want to see a Implant Dentist while there.( need gum treatment ,must hve)& a ulcer Dr.for Jen. Do u have any recommendations?we will b at crew hotel .would b great to meet if u want to.Once I get my suit $ I will b gung-ho TCM also korean. I have to stop now cz I can blah blah forever. LOL& can’t really get into details on line. PS gem healing is real also but always a person HAS to use mind to evacuate negative factions in body& mind. Hard! But works. Hollah back ! 20th Ishould b there.Not typical tourists,I’m European ,Chicagoan & southern. Any insights? Thanks later. Krista no Facebook twitter never.

    Mustafa Dündar

    (January 20, 2015 - 3:35 am)

    hello my name is Mustafa I am writing from turkey
    Unfortunately, I have 5 years ASI sick and I started using the latest anti-TNF drugs have tried many treatments but I want to overcome this disorder with far eastern herbal methods help me in this regard, please waiting for your advice ..

      Carrie Kellenberger

      (January 23, 2015 - 2:49 pm)

      Dear Mustafa,

      Thank you for your email.

      I have tried TCM, but to be honest, it only relieved a little of my inflammation. It didn’t come close to allowing me to overcome the disease. I do my best to control my symptoms through a clean diet, regular exercise (walking and yoga), and I try to get at least eight hours of sleep each night. I am really sorry to hear that you’re dealing with this awful disease. I wish you good health!


        (January 30, 2015 - 2:27 am)

        Hi! Hearing your story is so moving. Thank you for sharing. The more of us that can share the more we can help. I too have AS. It took me around 8 years to get diagnosed. I have tried just about every diet out there but it was not until the spring of 2014 that I started experimenting with Paleo and Autoimmune Protocol. If you have not already researched the Paleo Autoimmune Protocol I highly recommend you do. I went from wanting to cry every day to living a normal life again. My recent check up in Nov 2014 showed normal blood work! I am pretty much pain free most days and my morning stiffness has almost entirely gone away. I do still have small flares from time to time but when I do its almost always attributed to a slip up with my diet. Anyway, just wanted you to know how much diet has helped me if its not something you have tried before. If you are interested my blog has my entire story as well as lots of recipes that comply to Paleo and AIP. I guess I should also mention I am and have always been med free. TNF blockers scare me to death! All the luck to you in your continued healing journey.

          Carrie Kellenberger

          (January 30, 2015 - 11:18 am)

          Hi Katie,

          Thanks for stopping by. I’m sorry to hear that you have AS too, but it’s great that you’ve achieved a healthy lifestyle. I have looked into the Paleo Autoimmune diet as well as other natural remedies and I will be sure to stop by your blog and read up on what you’ve accomplished. TNF blockers scare me to death too, but I haven’t been able to manage a med-free lifestyle. I’m currently on 1,000mg of Sulfasalazine, 250mg of Celebrex, and Tramadol to keep the inflammation and pain levels at bay.


    (March 1, 2015 - 2:10 pm)

    Hai I too an AS patient. I am currently taking infusion for AS. The infusion is Remicade 300mg per course. Now there is no pain at all but still my movement of neck is restricted. After taking the infusion for 4 times my ESR level drop from 105mm to 5mm per hour. Any advice for me because I still having the limitation of movement of my neck.

    mohamed sheriff

    (April 1, 2017 - 5:03 am)

    hello my name is sheriff written from India now my age is 29 last 13 years I have the ankylosing Spondylitis problem I try lot of treatment but any treatment is not supporting for me finally the doctor say you are hip joint is very critical so he suggest there operation but I am not interested that I hope for me without surgery any treatment please suggest and help for me now I take Acupressure treatment that is fine for me what do you say please reply soon yours lovingly Sharif

      Carrie Kellenberger

      (September 27, 2017 - 4:39 pm)

      Hi Sharif. Thank you so much for stopping by and commenting. I am so sorry to hear that you have AS. I wish I could make suggestions for you, but I’m not a doctor and I am not qualified to answer. I am still searching for my own answers. My disease activity is progressing quickly and to date, I haven’t found anything that really helps me. I wish you the best of luck and hope that you can find some relief soon.


    (May 17, 2017 - 1:08 am)

    Hi, I was suffering from AS since 1990 but major pain started since 1996.
    Can you please suggest any treatment

    Thank you

      Carrie Kellenberger

      (July 11, 2017 - 2:08 pm)

      Hi Aqeel,

      I wish I could suggest treatment for you, but everyone is different and everyone responds differently to different medications. To date, I have only been able to manage my disease. There is no cure for AS. I just try to do my best to manage my time efficiently, minimize the impact on my body and make sure I get plenty of rest. I also have Chronic Fatigue Syndrome and Fibromyalgia among a host of other issues, so it’s important to stay on top of managing my day to day energy output. Good luck!


    (November 16, 2017 - 9:15 am)

    Hi Carrie and all,
    Let me share with you my case, hmmm. Lets start with childhood being misdiagnosed for more than 10 years.
    AS, i’ve experienced 80% of it. It’ll affect 7 common areas who suffer AS.
    1) Eye – Uveitis (under control now)
    2) Ears – Fortunately i have no encounter this yet
    3) Heart – Heart sharp pain when my blood vessel got blocked (1 min)
    4) Lungs – Inflammation and causing pain.
    5) Nerves – Come and go
    6) Kidney and Prostate – Yes, inflammation as well.
    7) amyloidosis – Nope, luckily.
    Alright, let share with you guys my bone inflammation and abnormal growth of bone. It’ll affect bone like Chest front ,back, rib cage, shoulder joint, bowel, butt bone, pelvis bone, ankles, feet and toes. Usually it’ll last more
    than a week.

    Lets talk about cause of triggering and activation of AS:
    1) Environment – What i observed was Food,water and air (Air pollution) Example: 2nd hand smoke, non fresh air environment, moldy area.
    Uncooked water, Unfiltered tap water, soft drinks.
    Meats that injected antibiotic and hormone etc….
    2) Genes – HLA-B27 Positive
    3) Immune disorder or dysfunction – due to Klebsiella for one of the bacteria which has similar antibody towards our immune system, in layman term, it can swim freely in our body without getting attack from our immune defense system. (This is serious and hard to kill it)
    4) Metabolism – Low metabolism cause our body get rid toxic out of our body slower and helps to reduce 5%-15% of inflammation.

    Therefore, we AS people need to find our own source of information that what trigger it and find the root of the source before we can treat it under control. That’s what i do, i studied western medicine and seen over 100 of Specialists which follow their by book “protocols” NSAIDs, TNF, Pain killers with serious side effects which affect your kidney, stomach tracts and TNF tumor.
    Western medicine work like this, it treat surface of the problem, example: you get pain, eat pain killer by stopping your nerve by cheating oneself not to feel it was there, and not find what causing the pain, the root of the problem. (one example)

    So…. I move on towards studying tcm, study tcm is a bit complicated, it is not so straight forward by learning it. i am still on the process of learning tcm. TCM is a slow process which need to observe the change of dosage and herbs. TCM is a way of changing your body balancing mode in your body. Example: if you cold hands and feet every time – you’re cold body type. If your body always too hot, it relate to extreme hot and cold body. When there is extreme and out of balance, body will get sick and become chronic, tumor and cancer. That’s how tcm point of view. In Chinese tcm saying : All kinds of medicines contain at least 30% of poison in it.

    For myself, 13 years ago, i was Warm and Hot body type, and hope to live in a north pole as i could not take heat. 13 years later, i became too cold, cold hands and feets. this is what i meant by extreme. When extreme hot,cold or both. It’ll trigger AS.

    Exercise is important and this is tricky as what Carrie had shared ” boundaries between too much exercise and the right amount. If I’m feeling fatigued in the slightest bit, I don’t go to the gym. And I’ve really started to notice a difference between good pain and bad pain.”
    I also noticed this problem when i do weight training, i slim down from 70kg to 62kg, quite sad, my 6 pack abs is gone.

    Conclusion : we need to be our own doctor. Why? Because nowadays doctor don’t really have time to hear you out and treat patients like white mice and test on drug and herbs, A does work, try B, B doesn’t work, try C, in the end, we the one who suffer even more like kidney failure. find out more about our self (allergies), study more like me, read more, observe more.
    Diet – eat clean, don’t let our body get infected as it will trigger AS even more from what i have notice and experienced, Especially diarrhea.
    Eat more vegetables and fruits, deep sea fish like salmon, try to avoid fed fishes (i know it’s hard to difficult)
    Test on your Vitamin D blood test see whether is it deficient.
    Less Stress as it will worsen AS.
    Eat less soya bean, bread, Artificial products and avoid fast food.
    Eat a bit of healthy oil from walnut, pine nuts, avocado etc…. in a balance amount, not too much. Everything too much will get adverse effect.
    Balance diet ,exercise is a key to control AS.
    Oh yes, Shampoo and body wash products try to use organic and avoid SLS etc…. those you read and chemical wording that you don’t understand. (Avoid)
    I notice Kidney (Qi) weaken will also trigger AS.
    Lastly, Do not burn midnight oil, it will worsen AS (like me)
    That’s all i can share for now, if in the future i can fixed my AS, i will share with you guys and help you guys out. Let me study tcm books more and do experiment on my own body to test.
    As you know, find the right doctor is a key too.
    nowadays outside doctor just want to earn money and don’t really care about patient needs.
    Good luck to all AS patients.

    Jack Graham

    (March 7, 2018 - 9:59 am)

    Hi. I was diagnosed with AS about 38 years ago. Glad i found this site. I have many storys i will tell soon. Anybody ever heard of haritaki? This is my next venture. I ll talk to you all soon. I want to read everybodies stories first. Hope you are all kicking AS.

Leave a Reply

Your email address will not be published. Required fields are marked *