Ankylosing Spondylitis – Where To Donate

Ankylosing Spondylitis creates disabling fatigue as your body fights off chronic inflammation, pain, and suffering daily.

Imagine a disease that steals your body and your personality. It creates havoc with your skeletal system, your nervous system, your circulatory system, your respiratory system, your integumentary system, and your general health. Imagine a disease that is invisible, but it creates a constant state of fatigue that is disabling as your body works to fight off chronic inflammation.

Now imagine if there was a cure for Ankylosing Spondylitis.February 2017 when I received my CRPS diagnosis.

As someone who suffers from Ankylosing Spondylitis, I know that medical research will unlock the mysteries of AS one of these days, but I can’t help feeling fear and a sense of time slipping away as we wait for the possibility of a cure to arrive for Ankylosing Spondylitis and its family of related diseases.

Will it come in my lifetime? I fear not.

Currently there is no cure for Ankylosing Spondylitis, although there are treatments and medications that can help to reduce the symptoms and manage the pain. New studies have shown that biologics and biosimilars can potentially help to slow disease progression in some people, but these treatments are expensive, and many of us cannot get access to them. Many of us are still going through life undiagnosed and in constant pain.

Additionally, different people respond to different medications with varying levels of effectiveness, so there is no guarantee that each person will have access to the most effective course of treatment.

It’s a horrible thing to imagine that your own body is constantly betraying you. It turns you from a whole and healthy person into someone who has to adapt to a new normal – dependency on others and the fear of being incapable of performing even the simplest of tasks and personal responsibilities become a constant worry.

I find it incredibly hard to think that this disease might force someone I love to care for me for the rest of my life.

According to the Spondylitis Association of America, over 2.7 million Americans are affected by Spondylitis and its family of related diseases, and if you are visiting this page, you, too, might have personal reasons to hate this wickedly cruel and vicious disease.

Visit this page on the Spondylitis Association of America to donate to be redirected to the SAA donation page.top_nav_01

This is the organization I support regularly. I rely on them for up to the date information to show to my own doctors in Taiwan.

“SAA is the only nonprofit organization in the US dedicating 100% of its resources to improving the lives of spondylitis patients and their families. If you share our commitment to ending spondylitis, you can enter or select your tax-deductible donation below.”

What is holding us back from finding a cure? In two words: Funding and awareness.

Sincerely,

Carrie Kellenberger

 

 

 

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